Opinion

The AHCA Would Put the Lives of Millions Like Me At Stake

Thursday, May 18, 2017I am one of the millions of people across the country who have benefited from the Patient Protection and Affordable Care Act (ACA). I have significant medical costs as a result of living with a rare genetic neurometabolic disorder, a

#IAmAPreExisitingCondition and I Am Afraid I Will Die Under AHCA

Wednesday, May 10, 2017If the American Health Care Act (AHCA) becomes law, it is my death sentence. There are probably supporters of the law out there who think that this statement lacks nuance, but it’s true. As a woman with multiple serious pre-existing…

How Having a Disabled Mom Helped Shape My Identity as a Disabled Woman

Thursday, May 4, 2017I grew up with a disabled mom. It meant that we didn’t have a car, because my mom was visually impaired and couldn’t drive. We walked to the grocery store weekly, took the bus to doctor’s appointments and the mall,…

My Journey with Disability Language and Identity

Monday, April 10, 2017Are we “handicapped” or “disabled,” “disabled people” or “people with disabilities,” “differently abled” or “special needs?” The debate over disability language is exhausting and exasperating. But I come back to it because the ever-changing ways we talk and think about…

Why I Believe Cerebral Palsy “Awareness” is Important

Friday, March 24, 2017I had to explain spastic diplegia to my doctor a few weeks ago. It’s the particular type of cerebral palsy (CP) I have, and it’s also the most common type. I’ve long since given up hope of any general practitioner…

How the Positivity Only Movement Has a Negative Impact on the Disability Community

Thursday, February 23, 2017In September of 2012 I was young, hopelessly optimistic, and terrified of the implications two newly diagnosed autoimmune diseases would have on my existence. Having already been diagnosed with bipolar disorder at 18, I knew that this would be a…

Dear Meryl Streep: We Don’t Want Pity, We Want Progress

Thursday, January 12, 2017I didn’t watch the Golden Globes, but saw Meryl Streep’s speech the next day. As she blatantly called out the president-elect on his bullying of Serge Kovaleski, a disabled reporter, I wondered why that specific incident “sank its hooks in…

Why Archer’s Challenge Misrepresents the Experience of Wheelchair Users

Wednesday, December 14, 2016“As you saw, it’s a lot of coordination involved between moving the chair, pointing to maps and of course using the weather clicker,” Chikage Windler, chief meteorologist at CBS Austin, explains about her experience of using a wheelchair on the

True Activists Don’t Just “Drive-by”

Friday, December 9, 2016Here’s an unpopular opinion: Anderson Cooper’s recent coverage of “drive-by lawsuits” on 60 Minutes wasn’t nearly as egregious as many disabled people seem to believe. Such lawsuits, named for the speed and lack of warning with which they are…

Navigate through pages of results