The AHCA Would Put the Lives of Millions Like Me At Stake

Thursday, May 18, 2017I am one of the millions of people across the country who have benefited from the Patient Protection and Affordable Care Act (ACA). I have significant medical costs as a result of living with a rare genetic neurometabolic disorder, a

#IAmAPreExisitingCondition and I Am Afraid I Will Die Under AHCA

Wednesday, May 10, 2017If the American Health Care Act (AHCA) becomes law, it is my death sentence. There are probably supporters of the law out there who think that this statement lacks nuance, but it’s true. As a woman with multiple serious pre-existing…

Valuing Activism of All Kinds

Wednesday, April 5, 2017Recently, disabled activists from ADAPT protested in Washington, DC as the House debated the American Health Care Act (AHCA). Fifty-four badass disabled people put their bodies on the line, chanting and drawing media attention on what is at stake if

Listen Up, Doctors: When Patients Talk, Pay Attention

Thursday, January 26, 2017It was midnight on a Monday, and the lesion on my leg was swollen to the size of a dinner plate, hot, and extremely painful. Although I had an excision for a sebaceous cyst scheduled for Thursday with the dermatologist,…

Healthcare Reform and its Impact on the Disabled Community: Restructuring Medicaid

Thursday, January 19, 2017As cuts to the Affordable Care Act (ACA/Obamacare) and Medicaid loom, the disability community is at risk. The uncertainty around impending changes have many disabled and chronically ill people quite literally in fear for their lives. As a healthcare advocate…

Why Healthcare Providers Need to Recognize and Respect Neurodiversity

Thursday, December 1, 2016Growing up as an undiagnosed autistic girl, I had many “behaviors” that baffled my parents and medical professionals. Seemingly unprovoked meltdowns, ritualistic, repetitive movements, and episodes of compulsive self-injury were explained away as a part of puberty, or diagnosed as…

This Year, I Have a Reason to Celebrate National Disability Employment Awareness Month

Wednesday, October 26, 2016National Disability Employment Awareness Month has a different feel for me this year because I recently accepted an offer for my first professional job as the new Project Manager for the CareerACCESS Program at the World Institute on Disability (WID). …

Report details vast discrimination in health care facilities

Tuesday, November 29, 2011The Equal Rights Center recently released an extensive report highlighting a range of Americans with Disabilities Act accessibility violations in health care facilities.
Reports Cites Inaccessible Facilities
According to the report, just 25 percent of the nation’s medical service providers…

Affordable Care Act amended

Saturday, November 26, 2011Legislation closing a loophole in the Obama health care bill, that would have provide Medicaid to three million new individuals, was signed President Obama on Monday.
Medicaid Fix Enacted
The provision, which was found after the Affordable Care Act was…

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