Health

First Doctors Told Me My Pain Was All In My Head, Then They Told Me I Would Die

Tuesday, April 24, 2018My disability requires me to carry memory foam pillows with me everywhere I go.  My disability is invisible — the pillows are not. At a recent cardiology appointment, a nurse made fun of my memory foam pillows, assuming I was…

Why Won’t Doctors Believe Women in Pain?

Tuesday, March 13, 2018I’ve never been drunk, never once succumbed to peer pressure to smoke, do drugs or get high.  I’m not a partier — never have been, never will be.  Up until three and a half years ago, the strongest substance I…

CVS’s New Opioid Policy Does Nothing to Solve Addiction While Negatively Impacting Pain Patients

Friday, October 13, 2017On September 21st, CVS Pharmacy announced a significant change in their policy regarding prescription opioid painkillers. According to CVS, “this program will include limiting to seven days the supply of opioids dispensed for certain acute prescriptions for patients who

How My Cancer Diagnosis Has Led Me to Redefine Disability

Tuesday, August 15, 2017After decades of looking at Multiple Sclerosis as a disability rather than a disease, my experiences are forcing me to reexamine my perspective on illness and to redefine disability. I, like many people with disabilities of my generation, rejected the…

Navigating Mobility Aid Misconceptions

Thursday, June 29, 2017When I first started using a cane, I was faced immediately with misconceptions about mobility aids. I knew from being out in public with friends who use wheelchairs that strangers aren’t shy about asking what someone’s disability is. I was

I Had a Kidney Transplant, and the AHCA Would Cause Me Significant Financial Troubles

Wednesday, June 21, 2017Almost three years ago, I had a kidney transplant that saved my life after living with chronic kidney disease for 35 years. The American Health Care Act (AHCA), which was just passed by the House and is going to move

Dealing with Medical Ableism

Friday, June 9, 2017I have a tracheostomy and use a ventilator to breathe at night. It works well for me, and I have no regrets, but every couple of years, I wind up in the hospital with some kind of upper respiratory infection.…

Why We Cannot Allow the AHCA to Pull Our Lives Out From Under Us

Tuesday, June 6, 2017I am Autistic and I have depended on Medicaid for my health care coverage for 23 years now. During those years, I have watched my coverage expand and shrink, depending on the political climate and the state I was living…

The AHCA Would Put the Lives of Millions Like Me At Stake

Thursday, May 18, 2017I am one of the millions of people across the country who have benefited from the Patient Protection and Affordable Care Act (ACA). I have significant medical costs as a result of living with a rare genetic neurometabolic disorder, a

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