Stop Telling Chronic Pain Patients That We Should Just Accept Our Pain

Thursday, June 21, 2018The “pain acceptance” movement has begun to gain traction in the wake of deaths from the opioid epidemic—at its most basic, pain acceptance counsels that people in chronic pain should accept that they will always be in some level of…

It’s Time to Stop Ignoring the Intersections of Marginalized Identities

Friday, May 25, 2018Intersectionality, according Kimberlé Crenshaw who coined the term, “is a lens through which you can see where power comes and collides, where it interlocks and intersects.” It has also been defined as “a framework designed to explore

May is Ehlers-Danlos Syndrome Awareness Month. Here’s What You Should Know.

Wednesday, May 23, 2018When I tell people I have Ehlers-Danlos syndrome (EDS), they usually give me a blank stare or reply, “What does that mean?” Answering doesn’t clear up any of their questions, and it actually creates more: How did I get EDS?…

First Doctors Told Me My Pain Was All In My Head, Then They Told Me I Would Die

Tuesday, April 24, 2018My disability requires me to carry memory foam pillows with me everywhere I go.  My disability is invisible — the pillows are not. At a recent cardiology appointment, a nurse made fun of my memory foam pillows, assuming I was…

Why Won’t Doctors Believe Women in Pain?

Tuesday, March 13, 2018I’ve never been drunk, never once succumbed to peer pressure to smoke, do drugs or get high.  I’m not a partier — never have been, never will be.  Up until three and a half years ago, the strongest substance I…

CVS’s New Opioid Policy Does Nothing to Solve Addiction While Negatively Impacting Pain Patients

Friday, October 13, 2017On September 21st, CVS Pharmacy announced a significant change in their policy regarding prescription opioid painkillers. According to CVS, “this program will include limiting to seven days the supply of opioids dispensed for certain acute prescriptions for patients who

How My Cancer Diagnosis Has Led Me to Redefine Disability

Tuesday, August 15, 2017After decades of looking at Multiple Sclerosis as a disability rather than a disease, my experiences are forcing me to reexamine my perspective on illness and to redefine disability. I, like many people with disabilities of my generation, rejected the…

Navigating Mobility Aid Misconceptions

Thursday, June 29, 2017When I first started using a cane, I was faced immediately with misconceptions about mobility aids. I knew from being out in public with friends who use wheelchairs that strangers aren’t shy about asking what someone’s disability is. I was

I Had a Kidney Transplant, and the AHCA Would Cause Me Significant Financial Troubles

Wednesday, June 21, 2017Almost three years ago, I had a kidney transplant that saved my life after living with chronic kidney disease for 35 years. The American Health Care Act (AHCA), which was just passed by the House and is going to move

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