Awareness

May is Ehlers-Danlos Syndrome Awareness Month. Here’s What You Should Know.

Wednesday, May 23, 2018When I tell people I have Ehlers-Danlos syndrome (EDS), they usually give me a blank stare or reply, “What does that mean?” Answering doesn’t clear up any of their questions, and it actually creates more: How did I get EDS?…

I’m Tired of Being Accused of “Faking” My Need for a Service Animal

Tuesday, May 15, 2018Recently, while on a date, the subject of service animals came up. My date spoke of a female coworker of theirs who would occasionally bring a service dog to work. They expressed their disbelief about their coworker’s disability – an…

#DeleteFacebook? It’s Not that Simple for Disabled People

Tuesday, March 27, 2018Facebook has been in the news lately as details have come out about privacy breaches. An organization called Cambridge Analytica is accused of harvesting and using personal data from Facebook to direct political messages to specific users. Rightfully outraged by…

Proposed Changes to Nutritional Assistance Programs Will Disproportionately Affect Disabled People

Friday, February 16, 2018I am disabled and though I am not currently on food stamps, there have been times in my life when I have relied on them. Food stamps have been in the news again lately as the current administration has proposed

‘Tis the Season for Inclusive Holiday Festivities

Friday, December 15, 2017‘Tis the season for parties, from office holiday parties, to those hosted by friends and families, to charity galas. And we all know what comes with large public shindigs: Inevitable accessibility problems. When events designed to make people feel like…

The Labor of Expressing Femininity as a Disabled Woman

Monday, November 20, 2017It happened during the Are You There, God? It’s Me, Margaret years. The training bra years. Those years when periods and razors and nylons were as mysterious as ever, but became increasingly more fascinating. It occurred to me that I’d…

Activist Spotlight: Ariel Henley – Writer

Friday, November 17, 2017Ariel Henley has always loved writing, but didn’t always know that she would use it to amplify issues that she cares about, whether the topic is sex education for the disability community or media representation of facial disfigurement. Born

Why Involving Disabled People in Disaster Planning Saves Lives

Monday, October 2, 2017During Hurricane Harvey in August, a striking image went viral: Nursing home residents sitting in waist deep floodwaters, surrounded by floating debris, an angry cat in the background. The Harvey flooding victims (and the cat) were rescued, but scarcely

How the Film “Wonder” is Commercializing Facial Difference

Wednesday, September 20, 2017As a writer and activist, there’s no feeling quite like finding out a professor at a well known university used my work in their class to start a discussion about disfigurement and equality for individuals living with physical differences. I

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