What are We Talking About

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This week, I looked high and low, trying to find you inspirational, humorous conversation-provoking topics for your viewing pleasure.

1.In a new study in the Journal of General Internal Medicine, adults with autism are reported as having a harder time accessing health companies compared with those who don’t have autism. As a group, those who are on the autism spectrum are “reporting more unmet health care needs, greater use of the emergency room”  and more reports of being “less satisfied with communication from doctors” and not being comfortable navigating the tough waters known as the health care system. What can be done to encourage more doctors to make sure that adults with autism are seeking the care that they need? Well, first, doctors must be willing to make and/or provide accommodations. Some possible accommodations include “providing an alternative to waiting areas that may be over-stimulating, allowing patients to communicate by writing or typing and utilizing very precise language and step-by-step instructions”, the study states. Found on the Disability Scoop homepage.

2.While the connection between Down syndrome and the number of fatalities related to it have decreased among American children, Black children still remain twice as likely to die from the syndrome. “Compared with non-Hispanic White children, non-Hispanic children have a lower survival beyond infancy,” says a study that was published in Pediatrics, a medical journal. When children are born at 3.3 pounds or less, they are 24 times(!) more likely to die. Typically, humans have two sets of 23 chromosomes, or a total of 46 gene pockets control development both inside and outside of the womb. However, children with Down syndrome have a total of three copies of the chromosome 21, which affects how a child develops mentally and physically. While there is no way to completely prevent the development of Down syndrome, there are some steps that you can take. Found on the Center for Leadership in Disability Facebook page.

3.Kim Benson had gone through it all: from suffering from drug abuse for years to overcoming homelessness, she was prepared to overcome ever single situation and she was prepared to go through it with her fists in the air. But then came Hurricane Sandy, which turned her first-floor apartment into a swimming pool. The flood destroyed just about all of her possessions, but instead of turning back to her old ways, she picked herself up and fought her way to the very top again. Although she has from agoraphobia, she has found ways to cope and will continue to rise above the flames. She is truly inspirational. You can read about her story on the New York Times.

4.There has been new research that states that an aging parent who happens to be caring for an adult child with a mental illness or developmental disabilities is at an increased risk for developing disabilities as well. The rate? Approximately 38 percent more. The research compares the economic and psycho social challenges that are faced by parents of adult children with disabilities with those parents of children without disabilities. “Parents of adult children with disabilities often suffer from a heavy financial burden, as many expenses they acquire are not fully covered by insurance,” the study suggests. Found on the “disability” tag for Twitter.