Opinion

I Had a Kidney Transplant, and the AHCA Would Cause Me Significant Financial Troubles

Wednesday, June 21, 2017Almost three years ago, I had a kidney transplant that saved my life after living with chronic kidney disease for 35 years. The American Health Care Act (AHCA), which was just passed by the House and is going to move

Why We Cannot Allow the AHCA to Pull Our Lives Out From Under Us

Tuesday, June 6, 2017I am Autistic and I have depended on Medicaid for my health care coverage for 23 years now. During those years, I have watched my coverage expand and shrink, depending on the political climate and the state I was living…

New Laws Could Put Access on the Line at State and National Levels

Tuesday, May 30, 2017Imagine being Deaf and pregnant but not being able to discuss your concerns with your obstetrician for six months while waiting for your doctor’s office to get an ASL interpreter. Or what about having to wait two months for a…

The AHCA Would Put the Lives of Millions Like Me At Stake

Thursday, May 18, 2017I am one of the millions of people across the country who have benefited from the Patient Protection and Affordable Care Act (ACA). I have significant medical costs as a result of living with a rare genetic neurometabolic disorder, a

#IAmAPreExisitingCondition and I Am Afraid I Will Die Under AHCA

Wednesday, May 10, 2017If the American Health Care Act (AHCA) becomes law, it is my death sentence. There are probably supporters of the law out there who think that this statement lacks nuance, but it’s true. As a woman with multiple serious pre-existing…

How Having a Disabled Mom Helped Shape My Identity as a Disabled Woman

Thursday, May 4, 2017I grew up with a disabled mom. It meant that we didn’t have a car, because my mom was visually impaired and couldn’t drive. We walked to the grocery store weekly, took the bus to doctor’s appointments and the mall,…

My Journey with Disability Language and Identity

Monday, April 10, 2017Are we “handicapped” or “disabled,” “disabled people” or “people with disabilities,” “differently abled” or “special needs?” The debate over disability language is exhausting and exasperating. But I come back to it because the ever-changing ways we talk and think about…

Why I Believe Cerebral Palsy “Awareness” is Important

Friday, March 24, 2017I had to explain spastic diplegia to my doctor a few weeks ago. It’s the particular type of cerebral palsy (CP) I have, and it’s also the most common type. I’ve long since given up hope of any general practitioner…

How the Positivity Only Movement Has a Negative Impact on the Disability Community

Thursday, February 23, 2017In September of 2012 I was young, hopelessly optimistic, and terrified of the implications two newly diagnosed autoimmune diseases would have on my existence. Having already been diagnosed with bipolar disorder at 18, I knew that this would be a…

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