Health

I Had a Kidney Transplant, and the AHCA Would Cause Me Significant Financial Troubles

Wednesday, June 21, 2017Almost three years ago, I had a kidney transplant that saved my life after living with chronic kidney disease for 35 years. The American Health Care Act (AHCA), which was just passed by the House and is going to move

Dealing with Medical Ableism

Friday, June 9, 2017I have a tracheostomy and use a ventilator to breathe at night. It works well for me, and I have no regrets, but every couple of years, I wind up in the hospital with some kind of upper respiratory infection.…

Why We Cannot Allow the AHCA to Pull Our Lives Out From Under Us

Tuesday, June 6, 2017I am Autistic and I have depended on Medicaid for my health care coverage for 23 years now. During those years, I have watched my coverage expand and shrink, depending on the political climate and the state I was living…

The AHCA Would Put the Lives of Millions Like Me At Stake

Thursday, May 18, 2017I am one of the millions of people across the country who have benefited from the Patient Protection and Affordable Care Act (ACA). I have significant medical costs as a result of living with a rare genetic neurometabolic disorder, a

#IAmAPreExisitingCondition and I Am Afraid I Will Die Under AHCA

Wednesday, May 10, 2017If the American Health Care Act (AHCA) becomes law, it is my death sentence. There are probably supporters of the law out there who think that this statement lacks nuance, but it’s true. As a woman with multiple serious pre-existing…

Valuing Activism of All Kinds

Wednesday, April 5, 2017Recently, disabled activists from ADAPT protested in Washington, DC as the House debated the American Health Care Act (AHCA). Fifty-four badass disabled people put their bodies on the line, chanting and drawing media attention on what is at stake if

Listen Up, Doctors: When Patients Talk, Pay Attention

Thursday, January 26, 2017It was midnight on a Monday, and the lesion on my leg was swollen to the size of a dinner plate, hot, and extremely painful. Although I had an excision for a sebaceous cyst scheduled for Thursday with the dermatologist,…

Healthcare Reform and its Impact on the Disabled Community: Restructuring Medicaid

Thursday, January 19, 2017As cuts to the Affordable Care Act (ACA/Obamacare) and Medicaid loom, the disability community is at risk. The uncertainty around impending changes have many disabled and chronically ill people quite literally in fear for their lives. As a healthcare advocate…

Why Healthcare Providers Need to Recognize and Respect Neurodiversity

Thursday, December 1, 2016Growing up as an undiagnosed autistic girl, I had many “behaviors” that baffled my parents and medical professionals. Seemingly unprovoked meltdowns, ritualistic, repetitive movements, and episodes of compulsive self-injury were explained away as a part of puberty, or diagnosed as…

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