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My Paraprofessional Was Supposed to Help Me; Instead, She Bullied Me

Tuesday, May 23, 2017Every day, I’d come home from high school and tell my parents that I was being bullied. They didn’t realize how bad it was until one late April day in 10th grade. My teacher informed the class that we were…

The AHCA Would Put the Lives of Millions Like Me At Stake

Thursday, May 18, 2017I am one of the millions of people across the country who have benefited from the Patient Protection and Affordable Care Act (ACA). I have significant medical costs as a result of living with a rare genetic neurometabolic disorder, a

New Lawsuit Tackles the Notorious Inaccessibility of the NYC Subway System

Tuesday, May 16, 2017New York City’s (NYC’s) public transportation system is notoriously inaccessible. Only about one in every five subway stations is wheelchair accessible, compared to about 90% of the subway system in Boston, where I currently live. Two class action lawsuits

#IAmAPreExisitingCondition and I Am Afraid I Will Die Under AHCA

Wednesday, May 10, 2017If the American Health Care Act (AHCA) becomes law, it is my death sentence. There are probably supporters of the law out there who think that this statement lacks nuance, but it’s true. As a woman with multiple serious pre-existing…

How Having a Disabled Mom Helped Shape My Identity as a Disabled Woman

Thursday, May 4, 2017I grew up with a disabled mom. It meant that we didn’t have a car, because my mom was visually impaired and couldn’t drive. We walked to the grocery store weekly, took the bus to doctor’s appointments and the mall,…

Five Questions for ACLU Attorney Susan Mizner

Tuesday, May 2, 2017Image description: 
A group of people with both visible and hidden disabilities is gathered in the Light Court at City Hall.  They are holding posters of people with disabilities who have been killed by the police.  An ACLU Disability Rights

Knowledge is Power When Advocating for Disability Rights

Wednesday, April 26, 2017Traveling is a stressful process for anyone; but after navigating the city of Las Vegas upon flying in, I hoped to have a little time to unwind. I was relaxing to the sound of my guide dog, Jason, lapping up…

Dear United, What If David Dao Had Been Disabled?

Thursday, April 20, 2017Dear United, Earlier this month, David Dao was dragged off a flight from Chicago to Louisville. He suffered a concussion, a broken nose, sinus damage, and several lost teeth. While I’m empathetic toward Dao and his family, this is not

My Journey with Disability Language and Identity

Monday, April 10, 2017Are we “handicapped” or “disabled,” “disabled people” or “people with disabilities,” “differently abled” or “special needs?” The debate over disability language is exhausting and exasperating. But I come back to it because the ever-changing ways we talk and think about…

Valuing Activism of All Kinds

Wednesday, April 5, 2017Recently, disabled activists from ADAPT protested in Washington, DC as the House debated the American Health Care Act (AHCA). Fifty-four badass disabled people put their bodies on the line, chanting and drawing media attention on what is at stake if

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