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I Had a Kidney Transplant, and the AHCA Would Cause Me Significant Financial Troubles

Wednesday, June 21, 2017Almost three years ago, I had a kidney transplant that saved my life after living with chronic kidney disease for 35 years. The American Health Care Act (AHCA), which was just passed by the House and is going to move

Reflecting on the Impact of #DisabilityTooWhite

Wednesday, June 14, 2017It’s been just over a year since activist and Rooted in Rights’ new Digital Manager, Vilissa Thompson, created #DisabilityTooWhite (the hashtag turned a year old on May 18), and started meaningful conversations about race and intersectionality in the disability community.…

Dealing with Medical Ableism

Friday, June 9, 2017I have a tracheostomy and use a ventilator to breathe at night. It works well for me, and I have no regrets, but every couple of years, I wind up in the hospital with some kind of upper respiratory infection.…

Why We Cannot Allow the AHCA to Pull Our Lives Out From Under Us

Tuesday, June 6, 2017I am Autistic and I have depended on Medicaid for my health care coverage for 23 years now. During those years, I have watched my coverage expand and shrink, depending on the political climate and the state I was living…

New Laws Could Put Access on the Line at State and National Levels

Tuesday, May 30, 2017Imagine being Deaf and pregnant but not being able to discuss your concerns with your obstetrician for six months while waiting for your doctor’s office to get an ASL interpreter. Or what about having to wait two months for a…

My Paraprofessional Was Supposed to Help Me; Instead, She Bullied Me

Tuesday, May 23, 2017Every day, I’d come home from high school and tell my parents that I was being bullied. They didn’t realize how bad it was until one late April day in 10th grade. My teacher informed the class that we were…

The AHCA Would Put the Lives of Millions Like Me At Stake

Thursday, May 18, 2017I am one of the millions of people across the country who have benefited from the Patient Protection and Affordable Care Act (ACA). I have significant medical costs as a result of living with a rare genetic neurometabolic disorder, a

New Lawsuit Tackles the Notorious Inaccessibility of the NYC Subway System

Tuesday, May 16, 2017New York City’s (NYC’s) public transportation system is notoriously inaccessible. Only about one in every five subway stations is wheelchair accessible, compared to about 90% of the subway system in Boston, where I currently live. Two class action lawsuits

#IAmAPreExisitingCondition and I Am Afraid I Will Die Under AHCA

Wednesday, May 10, 2017If the American Health Care Act (AHCA) becomes law, it is my death sentence. There are probably supporters of the law out there who think that this statement lacks nuance, but it’s true. As a woman with multiple serious pre-existing…

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