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Rooted in Rights

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The Public Health Statistic that Fails Disabled People

Wednesday, October 19, 2016

I first encountered the term “Disability-Adjusted Life Years,” or DALYs, during my second year of studying public health in college, and as a disabled person, the concept is concerning to me. DALYs are a measure used to calculate the amount of healthy years of life lost to disease or disability. They account for the difference

Autism and Homelessness: The Real Crisis

Tuesday, October 18, 2016

Contrary to much media spin, autism is neither a tragedy nor a looming public health crisis. Autistics have always been here and research over the last decade has shown that while diagnosis has increased over time, the actual percentage prevalence of autism has not risen.1 What is a tragedy is how underserved we are. I

Letter from the New Editor in Chief of the Rooted in Rights Blog

Wednesday, October 12, 2016

The writing that flows from the disability community has long been a well from which I’ve drawn strength and power. When I speak out, the words of other disabled writers remind me I am not alone. And when my voice falters, I turn to those who have found within themselves the words to articulate what

People with disabilities should be viewed as dateable

Monday, October 10, 2016

Dr. Danielle Sheypuk is taking on the myth that people with disabilities are disconnected from sexuality. The first model who uses a wheelchair to be featured at New York Fashion Week, and Miss Wheelchair New York 2, Sheypuk believes that people with disabilities should be seen as the beautiful people they are – capable of

House passes disability special needs trusts measure

Friday, October 7, 2016

By a vote of 383-22 on September 20, the House of Representatives approved a new bill that allows people with disabilities to set up their own special needs trusts. “The Special Needs Trust Fairness and Medicaid Improvement Act corrects a discrepancy in current law that does not allow for a person with a disability to

Scream Queens fails at depicting character with NF

Thursday, October 6, 2016

The Children’s Tumor Foundation is calling for the popular TV show Scream Queens to educate itself about neurofibromatosis, or NF, following a recent episode filled with misinformation. In the episode, the show introduced a character with NF named Tyler. Tyler was depicted as having “bubble-like warts” when in reality some cases of NF can result

Supreme Court to hear Endrew special education case

Wednesday, October 5, 2016

The Supreme Court announced September 29 that it will review a case that could redefine the level of education that schools must legally provide to comply with federal special education law. The Individuals with Disabilities Education Act, passed in 1975, mandates that all special education students are entitled to a “free appropriate public education.” The